Shannon Rose=National Awareness for Ehlers-Danlos Syndrome
National Awareness for Ehlers-Danlos Syndrome
Guest : Shannon Rose, National Spokesperson for EDS, also known as “Mr. Hollywood”, Hollywood Reporter, and Publicist
Shannon suffers from EDS and is the National Spokesman for the syndrome
Shannon lost his voice for a year from EDS but still sang in the choir
Shannon regained his voice and managed to become a Professional Wrestling Ring Announcer at the age of 14 along with appearing in a video game
Shannon lost the use of his arms off and on through the years
His life story is at http://en.wikipedia.org/wiki/Shannon_Rose
Shannon has been heard on CNN, FOX and he’s the official Hollywood Reporter for the Mancow Experience. He’s been heard on thousands of top media outlets across the country
EDS (Ehlers-Danlos Syndrome) impacts many lives across the world and is often under diagnosed. The syndrome has no known cure and if untreated can cause life altering symptoms.
EDS is a collagen mutation that causes hyper-extensive joints. There are 6 variations of the disease, and two of them are fatal.
Hollywood Reporter “Mr. Hollywood” Shannon Rose knows all about EDS because he’s been diagnosed with the ailment, suffering all his life. As the National Spokesman for the ailment, Shannon will be able to discuss the following:
Date Recorded: 01/18/2012
Podcast of the interview Download: